View a range of resources on our theme of psychosocial wellbeing and shared by patient organisations attending the event. If your organisation has a resource that we could add to this page after today’s event please email details to firstname.lastname@example.org
Mental wellbeing and lung health
If you live with a lung condition, you might be more likely to experience problems with your mental health in addition to your physical symptoms. This factsheet explains how to look after your mental wellbeing, what mental health conditions you might experience, and where to find support if you are not feeling well.
Managing breathlessness at home during the COVID-19 pandemic
Many conditions, such as heart or lung diseases, cause breathlessness. Breathlessness can be very frightening and distressing, even in milder cases. Breathlessness may be made worse by fears about the COVID-19 (coronavirus) pandemic. During the current COVID-19 outbreak, you may have reduced access to your usual support networks. It is important that you continue the usual treatments for your underlying conditions (e.g. inhaler). It is okay to contact your usual health and social care team for support.
ELF COVID-19 Q&A
Find the answers to over one hundred questions about COVID-19 that have been answered by respiratory experts. If you have a question that is not covered, please email us:
Alpha-1 Wellness Webinars
In the wake of the COVID-19 pandemic, the Alpha-1 Foundation began a webinar series, touching on wellness topics such as mental health during the pandemic, social and psychological coping during COVID-19 isolation, and pulmonary rehabilitation and exercise that can be done at home.
The Alpha-1 Foundation also conducted a Global Podcast with guests from the USA, Spain, Ireland, and Argentina, where each speaker provided an update on the COVID-19 pandemic in their country and different Alpha-1 activities their organisations were conducting during that time.
Global Podcast: a1f.org/podcast
All of the 2020 Alpha-1 webinars can be found at a1f.org/webinars
Specific links to wellness webinars:
Mental Health During COVID-19: https://vimeo.com/400708615
Social and Psychological Coping During COVID-19 Isolation Webinar: https://vimeo.com/408999742
Pulmonary Rehab Webinar: Exercises you can do at home: https://vimeo.com/421674349
Mental Health & COVID-19: https://vimeo.com/447209804
Senior Director of Research Programs & Global Director
Communications & Global Coordinator
Deutsche Sarkoidose-Vereinigung (DSV)
Bewältigung statt überlastung
Resilience and other coping strategies
DSV_Resilienz als Immunsystem der Seele
Resilienz als Immunsystem der Seele
Die Krankheitsbewältigung bei chronischen Erkrankungen Teil 2
Lebensqualität und Krankheitsbewältigung bei chronischer Sarkoidose Teil 2
Wege zur Alltagsbewältigung bei Sarkoidose
Sport und Bewegung als Mittel der Krankheitsbewältigung
Die Krankheitsbewältigung bei chronischen Erkrankungen Teil 1
Lebensqualität und Krankheitsbewältigung bei chronischer Sarkoidose Teil 1
Contact: Dr Bernd Quadder, Vice-President - b.quadder@Sarkoidose.de