Delegates
Below is a list of the registered delegates for ELF Patient Organisation Day- we have not included contact details on this page, but please contact ELF if you would like to speak further with any of the delegates from today.
Delegates without a photograph
Swiss Sarcoidosis Association
Dr. Charvoz Linda, - Psychologist
Serbian Association of Sarcoidosis
Ana Ciganovic Katic - Patient representative
Pulmonary Hypertension and Scleroderma Patient Association
Ayse Kora Akersoy - Foreign Relations
Polish CF Foundation MATIO
Pawel Wójtowicz - President
PCD Family Support Group UK
Nhu Tran - Trustee
PCD Family Support Group UK
Dr Katie Dexter Volunteer - Communications Officer
Pakistan Chest Society
Dr. Muhammad Amin - Consultant Pulmonologist
National organization Allergy and me
Snezana Sundic Vardic - President
Lungenfibrose Forum Austria
Guenther Wanke - Chair
Lung Foundation Australia
Patricia Schluter - National Manager Policy and Advocacy
Lung Foundation Australia
Elizabeth Early- Program Manager
Lung Foundation Australia
Tonia Crawford General Manager - Consumer Programs
Lovexair Foundation
Shane Fitch - CEO & President
LAM Academy Sweden
Anette von Koch - Founder of LAM Academy Sweden
Icelandic Lung Association
Aldís Jónsdóttir - Chairman
Hipertension Pulmonar España HPE ORG
Roberto Martin Santos- Volunteer
Fungal Infection trust
Dr Graham Atherton - Patient support
FFAAIR
Dr Liliya Gentet - Member of Administration council
COPD Support Ireland
Joan Johnston - National Co-ordinator
CIRO
Frits Franssen - ELF professional advisory board
British Lung Foundation and AUK partnership
Leanne Keighley - Nurse Advisor
British Lung Foundation
Bernie Nolan - Head of High Value Partnerships
Asthma UK BLF partnership
Caroline Fredericks - Respiratory nurse specialist co-lead
Asthma Society of Ireland
Anna Marie Bourke - Advocacy and Research Officer
Asthma Society of Ireland
Deirdre Lennon - Interim Health Promotions Manager
Asthma PAG
Karen Needham - Patient
Aspergillosis Trust
Gillian Fairweather - Patient advocate
Asociación Nacional de Hipertension Pulmonar
Alba Pérez Sanz - Social worker
ApneuVereniging Vlaanderen
Mark De Quidt - President
Alpha-1 Plus asbl
Frank Willersinn - president
Alpha-1 Plus
Fernanda Aspilche Ferro - Volunteer
Allergy & Asthma Organization Of Kenya
Isaack Sunte - Founder & CEO
Alfa-1 Sweden
Angela de Jounge - Volunteer
ACSI - Amici Contro la Sarcoidosi Italia ONLUS
Gianluca Ziosi - Vice-President
ACSI - Amici Contro la Sarcoidosi Italia ONLUS
Filippo Martone - President
EUIPFF
Liam Galvin - Secretary of the board
Aspergillosis Trust
Sandra Hicks - Co-founder and pharmacist medical writer
Monash University
Annemarie Lee- Senior Lecturer
Action for Pulmonary Fibrosis
Caroline Dillon - Support group leader
ChILD Lung Foundation
Carlee Gilbert - Director
GAAPP
Allie Bahn - Global Outreach & Education Coordinator
Associação Portuguesa de Hipertensão Pulmonar
Teresa Carvalho Patient - Advocate
Pulmonary Hypertension Society of Latvia
Ieva Plume - Chair
Associação Portuguesa de Hipertensão Pulmonar
Teresa Carvalho - Patient advocate
EU-IPFF / ELF
Stephen Jones- President / Council Member
ELF Asthma PAG
Toni Gibson - Patient advocate
ELF PAG
Zena Powell - Patient representative
Patient Advisory Group
Bridget Harris - Volunteer
Patient Advisory Group
Petra Tempels - Volunteer
ELF bronchiectasis PAG
Ernest Lloyd - Volunteer
ELF COPD PAG
Phil Collis - Patient advisory group member
ELF bronchiectasis PAG
Thomas Ruddy - Advocate
Dutch Lung Foundation
Dominique Hamerlijnck - Volunteer/patient expert
ELF bronchiectasis PAG
Annette Posthumus - Patient Participant
Bronchiectasis PAG / ELF Council
Marta Almagro Manero - Member
AEACaP Asociación Española de Afectados de Cáncer de Pulmón
Bernard Gaspar Martínez - Chairman
Norwegian Asthma and Allergy Foundation / ELF bronchiectasis PAG
Tove Berg - Volunteer member of Patient Advisory Group in ELF
ERN Lung
Tamar Makhatadze - Patient representative
ELF Asthma PAG
Stephanie Ayre - Member
ELF cough patient advisory group (PAG)
Marian Windebank - Member
Associação Portuguesa de Hipertensão Pulmonar
Cátia Susana Lopes Rodrigues - Psicóloga
PHURDA
Oksana Kulish - Head
ELF lung cancer patient advisory group
Margaret Gould - Member
Österreichische Lungenunion
Otto Spranger - Managing Director
Athens Chest Diseases Hospital
Georgia Hardavella - Consultant Chest Physician
Kartagener Syndrom und Primäre Ciliäre Dyskinesie e.V.
Bernhard Rindlisbacher - Volunteer
Asthma UK
Jenny Negus - Research and Policy
University Medical Center Utrecht
Saskia Weldam - Researcher in Nursing Science
Asthma UK & British Lung Foundation Partnership
Erika Kennington - Head of Research and Innovation (asthma)
Asociacion de Apoyo e Informacion a Familiares y Pacientes con Neumonia -MEUMOAI
Catia Cilloniz – President
Alpha1 Deutschland e.V.
Marion Wilkens – President
Associazione Apnoici Italiani Onlus Aps
Luca Roberti – President
PHA Europe
Gergely Meszaros – Communication/advocacy manager
AIB - Associazione Italiana Bronchiettasie
Sandra Gori – Volunteer
European Federation of Allergy and Airways Diseases Patients' Association (EFA)
Valeria Ramiconi - Programme Manager
CF Foundation MATIO
Przemysław Marszałek - Member of the Board
AA1P- Associação Alfa1 de Portugal
Alice Margaça - President
Association of citizens with pulmonary hypertension "Breath" - in Bosnia and Herzegovina
Sabina Hodzic - Volunteer
Action for Pulmonary Fibrosis
Lucy Pigram - Nurse
Action for Pulmonary Fibrosis
Louise Wright - CEO