Delegates

Below is a list of the registered delegates for ELF Patient Organisation Day- we have not included contact details on this page, but please contact ELF if you would like to speak further with any of the delegates from today.

Delegates without a photograph

Swiss Sarcoidosis Association     

Dr. Charvoz Linda, - Psychologist

Serbian Association of Sarcoidosis            

Ana Ciganovic Katic - Patient representative

Pulmonary Hypertension and Scleroderma Patient Association   

Ayse Kora Akersoy - Foreign Relations

Polish CF Foundation MATIO      

Pawel Wójtowicz - President

PCD Family Support Group UK   

Nhu Tran - Trustee

PCD Family Support Group UK   

Dr Katie Dexter Volunteer - Communications Officer

Pakistan Chest Society  

Dr. Muhammad Amin - Consultant Pulmonologist

National organization Allergy and me     

Snezana Sundic Vardic - President

Lungenfibrose Forum Austria     

Guenther Wanke - Chair

Lung Foundation Australia           

Patricia Schluter - National Manager Policy and Advocacy

Lung Foundation Australia           

Elizabeth Early- Program Manager

Lung Foundation Australia           

Tonia Crawford General Manager - Consumer Programs

Lovexair Foundation

Shane Fitch - CEO & President

LAM Academy Sweden 

Anette von Koch - Founder of LAM Academy Sweden

Icelandic Lung Association           

Aldís Jónsdóttir - Chairman

Hipertension Pulmonar España HPE ORG           

Roberto Martin Santos- Volunteer

Fungal Infection trust    

Dr Graham Atherton - Patient support

FFAAIR

Dr Liliya Gentet - Member of Administration council

COPD Support Ireland   

Joan Johnston - National Co-ordinator

CIRO     

Frits Franssen - ELF professional advisory board

British Lung Foundation and AUK partnership     

Leanne Keighley - Nurse Advisor

British Lung Foundation

Bernie Nolan - Head of High Value Partnerships

Asthma UK BLF partnership        

Caroline Fredericks - Respiratory nurse specialist co-lead

Asthma Society of Ireland            

Anna Marie Bourke - Advocacy and Research Officer

Asthma Society of Ireland            

Deirdre Lennon - Interim Health Promotions Manager

Asthma PAG      

Karen Needham  - Patient

Aspergillosis Trust           

Gillian Fairweather - Patient advocate

Asociación Nacional de Hipertension Pulmonar 

Alba Pérez Sanz - Social worker

ApneuVereniging Vlaanderen    

Mark De Quidt - President

Alpha-1 Plus asbl             

Frank Willersinn - president

Alpha-1 Plus      

Fernanda Aspilche Ferro - Volunteer

Allergy & Asthma Organization Of Kenya              

Isaack Sunte - Founder & CEO

Alfa-1 Sweden 

Angela de Jounge - Volunteer

ACSI - Amici Contro la Sarcoidosi Italia ONLUS    

Gianluca Ziosi - Vice-President

ACSI - Amici Contro la Sarcoidosi Italia ONLUS    

Filippo Martone - President

EUIPFF 

Liam Galvin - Secretary of the board

Aspergillosis Trust           

Sandra Hicks - Co-founder and pharmacist medical writer

Monash University         

Annemarie Lee- Senior Lecturer

Action for Pulmonary Fibrosis    

Caroline Dillon - Support group leader

ChILD Lung Foundation

Carlee Gilbert - Director

GAAPP

Allie Bahn - Global Outreach & Education Coordinator

Associação Portuguesa de Hipertensão Pulmonar             

Teresa Carvalho Patient - Advocate

Pulmonary Hypertension Society of Latvia            

Ieva Plume - Chair

Associação Portuguesa de Hipertensão Pulmonar             

Teresa Carvalho - Patient advocate

EU-IPFF / ELF     

Stephen Jones- President / Council Member

ELF Asthma PAG              

Toni Gibson - Patient advocate

ELF PAG              

Zena Powell - Patient representative

Patient Advisory Group

Bridget Harris - Volunteer

Patient Advisory Group

Petra Tempels - Volunteer

ELF bronchiectasis PAG

Ernest Lloyd - Volunteer

ELF COPD PAG  

Phil Collis - Patient advisory group member

ELF bronchiectasis PAG

Thomas Ruddy - Advocate

Dutch Lung Foundation

Dominique Hamerlijnck - Volunteer/patient expert

ELF bronchiectasis PAG

Annette Posthumus - Patient Participant

Bronchiectasis PAG  / ELF Council             

Marta Almagro Manero - Member

AEACaP Asociación Española de Afectados de Cáncer de Pulmón

Bernard Gaspar Martínez - Chairman

Norwegian Asthma and Allergy Foundation / ELF bronchiectasis PAG       

Tove Berg - Volunteer member of Patient Advisory Group in ELF

ERN Lung

Tamar Makhatadze - Patient representative

ELF Asthma PAG              

Stephanie Ayre - Member

ELF cough patient advisory group (PAG)

Marian Windebank - Member

Associação Portuguesa de Hipertensão Pulmonar             

Cátia Susana Lopes Rodrigues - Psicóloga

PHURDA             

Oksana Kulish - Head

ELF lung cancer patient advisory group  

Margaret Gould - Member

Österreichische Lungenunion    

Otto Spranger - Managing Director

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Athens Chest Diseases Hospital
Georgia Hardavella - Consultant Chest Physician

Kartagener Syndrom und Primäre Ciliäre Dyskinesie e.V.
Bernhard Rindlisbacher - Volunteer

Asthma UK

Jenny Negus  - Research and Policy

 
University Medical Center Utrecht
Saskia Weldam - Researcher in Nursing Science

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Asthma UK & British Lung Foundation Partnership

Erika Kennington - Head of Research and Innovation (asthma)

Asociacion de Apoyo e Informacion a Familiares y Pacientes con Neumonia -MEUMOAI

Catia Cilloniz – President

Alpha1 Deutschland e.V.

Marion Wilkens – President

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Associazione Apnoici Italiani Onlus Aps

Luca Roberti – President

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PHA Europe

Gergely Meszaros – Communication/advocacy manager

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AIB - Associazione Italiana Bronchiettasie

Sandra Gori – Volunteer

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European Federation of Allergy and Airways Diseases Patients' Association (EFA)

Valeria Ramiconi - Programme Manager

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CF Foundation MATIO

Przemysław Marszałek - Member of the Board

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AA1P- Associação Alfa1 de Portugal

Alice Margaça - President

Association of citizens with pulmonary hypertension "Breath" - in Bosnia and Herzegovina

Sabina Hodzic - Volunteer

Action for Pulmonary Fibrosis

Lucy Pigram - Nurse

 
Action for Pulmonary Fibrosis
Louise Wright - CEO